LYMPHOMA COALITION
is a worldwide network of patient organisations with a full or partials focus on providing support to those affected by lymphoma, including chronic lymphocytic leukemia.
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Searching for clinical trial options doesn’t have to be overwhelming! 💡
Join Lymphoma Coalition and CancerBot today for our live educational webinar: Navigating Clinical Trial Searches with Confidence.
Learn practical ways to find and evaluate clinical trials, see a live step-by-step demonstration of CancerBot with a lymphoma-specific search example, and get your questions answered in our live Q&A! ✅For more information visit: cancerbot.org
Featuring:
🎙️ Dr. Samar Elkassas, Subject Matter Expert at CancerBot
🎙️ Natacha Bolaños, Head of Membership & Alliances at Lymphoma Coalition
🎙️ Kathryn Perry, Head of Communications & Information at Lymphoma Coalition)
🗓️ When: TODAY at 10:00 – 11:00 AM EST
📍 Where: Online via Microsoft Teams
Use the link below to join the live webinar today so you can take the guesswork out of clinical trial searches! 👇
teams.microsoft.com/meet/3507603021225869?p=VGLnR74fUu84Xer1np ... See MoreSee Less
During National Hospice and Palliative Care Month, we’re highlighting the importance of understanding the support available to people living with lymphoma or CLL and their care partners.
The 2026 Global Patient Survey on Lymphomas & CLL revealed a gap in understanding and communication.
▪️ 57% of respondents thought having palliative care meant a patient was at the end of their life.
▪️ 87% of respondents had not discussed palliative care with their or the patient’s healthcare team.
Palliative care can begin earlier in the cancer experience and be provided alongside treatment. It supports quality of life by helping address symptoms, emotional wellbeing and the needs of patients and families.
Hospice care focuses on comfort and support near the end of life. Both deserve clear, compassionate conversations that reflect each person’s needs and priorities.
Lymphoma Coalition believes patients and care partners deserve accessible information about their care options—and space to ask questions.
#HospiceAndPalliativeCareMonth #PalliativeCare #Lymphoma #CLL #PatientCentredCare ... See MoreSee Less
Lymphoma Coalition’s Lorna Warwick and Patricia Gilmore, Co-CEOs, and Natacha Bolaños, Head of Membership & Alliances, will attend the Cutaneous Lymphoma Foundation’s inaugural Quality of Life Workshop, taking place on 5–7 November 2026 in Philadelphia, USA.
The workshop will bring together patients, care partners, clinicians and global partners to identify shared priorities and develop practical actions to improve quality of life for people affected by cutaneous lymphoma. Discussions will consider everyday experiences beyond disease management, including sleep, emotional wellbeing, relationships and work.
The meeting offers an opportunity to strengthen collaboration and help keep patient experiences central to future care and support.
Cutaneous Lymphoma Foundation
www.clfoundation.org/quality-life-workshop ... See MoreSee Less
Patient perspectives belong in the discussions that shape healthcare research and decision-making.
Lymphoma Coalition has joined ISPOR’s Patient Council for the 2026–2028 term, represented by Marjorie Morrison, Senior Director, Policy & Advocacy.
The Council supports patient engagement in health economics and outcomes research, providing a forum to share experiences and identify priorities.
LC’s participation offers an opportunity to bring the perspectives of people affected by lymphoma and CLL into discussions about research, healthcare decision-making and meaningful patient engagement.
Learn more:
www.ispor.org/member-groups/councils-roundtables/patient-council
#PatientEngagement #PatientAdvocacy #Lymphoma ISPOR ... See MoreSee Less
Searching for clinical trial options doesn’t have to be overwhelming! 💡
Join Lymphoma Coalition and CancerBot for our live educational webinar: Navigating Clinical Trial Searches with Confidence.
Learn practical ways to find and evaluate clinical trials, see a live step-by-step demonstration of CancerBot with a lymphoma-specific search example, and get your questions answered in our live Q&A!
Featuring:
🎙️ Dr. Samar Elkassas, Subject Matter Expert at CancerBot
🎙️ Natacha Bolaños, Head of Membership & Alliances at Lymphoma Coalition
🎙️ Kathryn Perry, Head of Communications & Information at Lymphoma Coalition)
🗓️ When: Wednesday, 11 November 2026 | 10:00 – 11:00 AM EST
📍 Where: Online via Microsoft Teams
Click the link below to join the live webinar on 11 November at 10 AM EST so you can take the guesswork out of clinical trial searches! 👇
teams.microsoft.com/meet/3507603021225869?p=VGLnR74fUu84Xer1np ... See MoreSee Less
The right information can change the way patients experience their care. 💙
Understanding a lymphoma or CLL diagnosis is rarely straightforward. From unfamiliar terminology to weighing treatment options, patients and care partners are often expected to navigate complex information during an already overwhelming time.
During #HealthLiteracyMonth, we’re highlighting the importance of making health information clear, accessible and meaningful to the people who need it.
When patients understand their diagnosis and treatment options, they are better supported to ask questions, share their priorities and take an active role in decisions about their care.
At Lymphoma Coalition, we believe that meaningful shared decision-making begins with accessible information and open conversations between patients and healthcare professionals.
Let’s make health information easier to understand and ensure every patient’s voice has a place in their care.
#HealthLiteracyMonth #SharedDecisionMaking #Lymphoma #CLL ... See MoreSee Less