Understanding the information needs of lymphoma and CLL patients: A comparison of AsiaPacific and Europe.
Cherie D. Bates, Amanda Watson, Lorna Warwick; Lymphoma Coalition Organization, Mississauga, ON,
Canada; Lymphoma Coalition, Mississauga, ON, Canada
Background: Effective communication between healthcare providers and patients has improved patient
outcomes and satisfaction. This study aims to evaluate the impact of healthcare provider-patient
communication on patient satisfaction and outcomes in patients diagnosed with lymphoma and
chronic lymphocytic leukaemia (CLL). The study utilises data from the Lymphoma Coalition (LC)
2020 Global Patient Survey (GPS) to compare the information experiences of patients in the AsiaPacific (APAC) and European regions diagnosed with lymphoma and CLL.
Methods: We analysed a subset of patients from APAC region (n = 3021) and the European region (n = 4343) and examined the demographic characteristics of both groups. Statistical analyses, including chi-square tests and logistic regression, were performed using IBM SPSS v27 software to assess patients’ information experiences.
Results: The findings of this study reveal that patients in APAC experienced a lower likelihood of
receiving sufficient information at the time of diagnosis and expressed challenges in comprehending
treatment options and managing treatment-related side effects. Notably, compared to patients in
Europe, patients in APAC reported a greater need for information related to self-care (42% vs 14%) and
treatment options (68% vs 50%). Conclusions: This study highlights APAC patients with lymphoma &
CLL require more information, reflective of their health literacy levels, from their healthcare professionals. It is recommended that healthcare providers provide tailored information to improve patient outcomes and satisfaction.
Research Sponsor: Pfizer inc, AbbVie Corporation, Takeda Oncology