Lymphoma Coalition publishes research on the experiences of patients and care partners based on learnings from the Global Patient Survey on Lymphomas and CLL (GPS) and other projects.
It is imperative the issues raised by patients and their care partners through the biennial survey, interviews, focus groups and other initiatives are conveyed to the medical and research communities to improve care moving forward.
[{"id":44904,"link":"https:\/\/lymphoma-stg.clarovantdigital.com\/patient-reported-experiences-with-cancer-related-fatigue-crf-among-treated-adolescents-and-young-adults-aya-with-hodgkin-lymphoma-hl\/","name":"patient-reported-experiences-with-cancer-related-fatigue-crf-among-treated-adolescents-and-young-adults-aya-with-hodgkin-lymphoma-hl","thumbnail":{"url":"https:\/\/lymphoma-stg.clarovantdigital.com\/wp-content\/uploads\/SIOP_2026_LC_ePoster.jpg","alt":""},"title":"Patient-reported experiences with cancer-related fatigue (CRF) among treated adolescents and young adults (AYA) with Hodgkin Lymphoma (HL)","author":{"name":"lc_author","link":"https:\/\/lymphoma-stg.clarovantdigital.com\/author\/lc_author\/"},"date":"Jul 30, 2026","dateGMT":"2026-07-30 15:40:11","modifiedDate":"2026-07-30 15:40:12","modifiedDateGMT":"2026-07-30 15:40:12","commentCount":"0","commentStatus":"closed","categories":{"coma":"<a href=\"https:\/\/lymphoma-stg.clarovantdigital.com\/category\/treatmentsideeffects\/fatigue\/\" rel=\"category tag\">Fatigue<\/a>, <a href=\"https:\/\/lymphoma-stg.clarovantdigital.com\/category\/subtype-specific\/hodgkinlymphoma\/\" rel=\"category tag\">Hodgkin Lymphoma<\/a>, <a href=\"https:\/\/lymphoma-stg.clarovantdigital.com\/category\/lc-research\/\" rel=\"category tag\">LC Research<\/a>","space":"<a href=\"https:\/\/lymphoma-stg.clarovantdigital.com\/category\/treatmentsideeffects\/fatigue\/\" rel=\"category tag\">Fatigue<\/a> <a href=\"https:\/\/lymphoma-stg.clarovantdigital.com\/category\/subtype-specific\/hodgkinlymphoma\/\" rel=\"category tag\">Hodgkin Lymphoma<\/a> <a href=\"https:\/\/lymphoma-stg.clarovantdigital.com\/category\/lc-research\/\" rel=\"category tag\">LC Research<\/a>"},"taxonomies":{"post_tag":""},"readTime":{"min":1,"sec":23},"status":"publish","excerpt":""},{"id":40027,"link":"https:\/\/lymphoma-stg.clarovantdigital.com\/impact-of-ageing-on-the-survivorship-experiences-of-patients-with-hodgkin-lymphoma\/","name":"impact-of-ageing-on-the-survivorship-experiences-of-patients-with-hodgkin-lymphoma","thumbnail":{"url":"https:\/\/lymphoma-stg.clarovantdigital.com\/wp-content\/uploads\/2025-09-17-13_44_46-Greenshot.png","alt":""},"title":"Impact of Ageing on Survivorship in Hodgkin Lymphoma","author":{"name":"","link":"https:\/\/lymphoma-stg.clarovantdigital.com\/author\/firstname lastname\/"},"date":"Oct 24, 2022","dateGMT":"2022-10-24 17:54:00","modifiedDate":"2025-10-14 15:06:42","modifiedDateGMT":"2025-10-14 15:06:42","commentCount":"0","commentStatus":"open","categories":{"coma":"<a href=\"https:\/\/lymphoma-stg.clarovantdigital.com\/category\/accesstocare\/\" rel=\"category tag\">Access to Care<\/a>, <a href=\"https:\/\/lymphoma-stg.clarovantdigital.com\/category\/accesstocare\/age\/\" rel=\"category tag\">Age<\/a>, <a href=\"https:\/\/lymphoma-stg.clarovantdigital.com\/category\/subtype-specific\/hodgkinlymphoma\/\" rel=\"category tag\">Hodgkin Lymphoma<\/a>, <a href=\"https:\/\/lymphoma-stg.clarovantdigital.com\/category\/lc-research\/\" rel=\"category tag\">LC Research<\/a>, <a href=\"https:\/\/lymphoma-stg.clarovantdigital.com\/category\/psychosocialqualityoflife\/\" rel=\"category tag\">Psychosocial & Quality of Life<\/a>, <a href=\"https:\/\/lymphoma-stg.clarovantdigital.com\/category\/psychosocialqualityoflife\/qualityoflife\/\" rel=\"category tag\">Quality of Life<\/a>, <a href=\"https:\/\/lymphoma-stg.clarovantdigital.com\/category\/subtype-specific\/\" rel=\"category tag\">Subtype-Specific<\/a>, <a href=\"https:\/\/lymphoma-stg.clarovantdigital.com\/category\/psychosocialqualityoflife\/survivorship\/\" rel=\"category tag\">Survivorship<\/a>","space":"<a href=\"https:\/\/lymphoma-stg.clarovantdigital.com\/category\/accesstocare\/\" rel=\"category tag\">Access to Care<\/a> <a href=\"https:\/\/lymphoma-stg.clarovantdigital.com\/category\/accesstocare\/age\/\" rel=\"category tag\">Age<\/a> <a href=\"https:\/\/lymphoma-stg.clarovantdigital.com\/category\/subtype-specific\/hodgkinlymphoma\/\" rel=\"category tag\">Hodgkin Lymphoma<\/a> <a href=\"https:\/\/lymphoma-stg.clarovantdigital.com\/category\/lc-research\/\" rel=\"category tag\">LC Research<\/a> <a href=\"https:\/\/lymphoma-stg.clarovantdigital.com\/category\/psychosocialqualityoflife\/\" rel=\"category tag\">Psychosocial & Quality of Life<\/a> <a href=\"https:\/\/lymphoma-stg.clarovantdigital.com\/category\/psychosocialqualityoflife\/qualityoflife\/\" rel=\"category tag\">Quality of Life<\/a> <a href=\"https:\/\/lymphoma-stg.clarovantdigital.com\/category\/subtype-specific\/\" rel=\"category tag\">Subtype-Specific<\/a> <a href=\"https:\/\/lymphoma-stg.clarovantdigital.com\/category\/psychosocialqualityoflife\/survivorship\/\" rel=\"category tag\">Survivorship<\/a>"},"taxonomies":{"post_tag":""},"readTime":{"min":3,"sec":23},"status":"publish","excerpt":"Presented at the the International Symposium on Hodgkin Lymphoma (ISHL12) in Cologne, Germany, from October 22-24. Hodgkin lymphoma (HL) often affects young adults and has one of the highest cure rates among all cancers, leading to an increasing number of survivors each year.\n\nIts treatment may cause long-term or late effects, which can impact a patient\u2019s overall health and quality of life. These effects raise concerns about survivorship care and long-term management.\n\nThis study uses data from the Lymphoma Coalition (LC) 2022 Global Patient Survey (GPS) on lymphoma and CLL to examine the survivorship experiences of HL patients in remission."}]