Lymphoma Coalition publishes research on the experiences of patients and care partners based on learnings from the Global Patient Survey on Lymphomas and CLL (GPS) and other projects.
It is imperative the issues raised by patients and their care partners through the biennial survey, interviews, focus groups and other initiatives are conveyed to the medical and research communities to improve care moving forward.
[{"id":44904,"link":"https:\/\/lymphoma-stg.clarovantdigital.com\/patient-reported-experiences-with-cancer-related-fatigue-crf-among-treated-adolescents-and-young-adults-aya-with-hodgkin-lymphoma-hl\/","name":"patient-reported-experiences-with-cancer-related-fatigue-crf-among-treated-adolescents-and-young-adults-aya-with-hodgkin-lymphoma-hl","thumbnail":{"url":"https:\/\/lymphoma-stg.clarovantdigital.com\/wp-content\/uploads\/SIOP_2026_LC_ePoster.jpg","alt":""},"title":"Patient-reported experiences with cancer-related fatigue (CRF) among treated adolescents and young adults (AYA) with Hodgkin Lymphoma (HL)","author":{"name":"lc_author","link":"https:\/\/lymphoma-stg.clarovantdigital.com\/author\/lc_author\/"},"date":"Jul 30, 2026","dateGMT":"2026-07-30 15:40:11","modifiedDate":"2026-07-30 15:40:12","modifiedDateGMT":"2026-07-30 15:40:12","commentCount":"0","commentStatus":"closed","categories":{"coma":"<a href=\"https:\/\/lymphoma-stg.clarovantdigital.com\/category\/treatmentsideeffects\/fatigue\/\" rel=\"category tag\">Fatigue<\/a>, <a href=\"https:\/\/lymphoma-stg.clarovantdigital.com\/category\/subtype-specific\/hodgkinlymphoma\/\" rel=\"category tag\">Hodgkin Lymphoma<\/a>, <a href=\"https:\/\/lymphoma-stg.clarovantdigital.com\/category\/lc-research\/\" rel=\"category tag\">LC Research<\/a>","space":"<a href=\"https:\/\/lymphoma-stg.clarovantdigital.com\/category\/treatmentsideeffects\/fatigue\/\" rel=\"category tag\">Fatigue<\/a> <a href=\"https:\/\/lymphoma-stg.clarovantdigital.com\/category\/subtype-specific\/hodgkinlymphoma\/\" rel=\"category tag\">Hodgkin Lymphoma<\/a> <a href=\"https:\/\/lymphoma-stg.clarovantdigital.com\/category\/lc-research\/\" rel=\"category tag\">LC Research<\/a>"},"taxonomies":{"post_tag":""},"readTime":{"min":1,"sec":23},"status":"publish","excerpt":""},{"id":44147,"link":"https:\/\/lymphoma-stg.clarovantdigital.com\/patient-reported-experiences-with-cancer-related-fatigue-crf-following-treatment-with-car-t-cell-therapy-car-t-in-patients-with-lymphoma-or-chronic-lymphocytic-leukemia-cll\/","name":"patient-reported-experiences-with-cancer-related-fatigue-crf-following-treatment-with-car-t-cell-therapy-car-t-in-patients-with-lymphoma-or-chronic-lymphocytic-leukemia-cll","thumbnail":{"url":"https:\/\/lymphoma-stg.clarovantdigital.com\/wp-content\/uploads\/PCR183_ISPOR_MAY17_2026.jpg","alt":""},"title":"Patient-reported experiences with cancer-related fatigue (CRF) following treatment with car t-cell therapy (CAR-T) in patients with lymphoma or chronic lymphocytic leukemia (CLL)","author":{"name":"lc_author","link":"https:\/\/lymphoma-stg.clarovantdigital.com\/author\/lc_author\/"},"date":"May 20, 2026","dateGMT":"2026-05-20 13:11:47","modifiedDate":"2026-05-20 13:11:51","modifiedDateGMT":"2026-05-20 13:11:51","commentCount":"0","commentStatus":"closed","categories":{"coma":"<a href=\"https:\/\/lymphoma-stg.clarovantdigital.com\/category\/treatmentsideeffects\/fatigue\/\" rel=\"category tag\">Fatigue<\/a>, <a href=\"https:\/\/lymphoma-stg.clarovantdigital.com\/category\/lc-research\/\" rel=\"category tag\">LC Research<\/a>, <a href=\"https:\/\/lymphoma-stg.clarovantdigital.com\/category\/treatmentsideeffects\/\" rel=\"category tag\">Treatment & Side Effects<\/a>","space":"<a href=\"https:\/\/lymphoma-stg.clarovantdigital.com\/category\/treatmentsideeffects\/fatigue\/\" rel=\"category tag\">Fatigue<\/a> <a href=\"https:\/\/lymphoma-stg.clarovantdigital.com\/category\/lc-research\/\" rel=\"category tag\">LC Research<\/a> <a href=\"https:\/\/lymphoma-stg.clarovantdigital.com\/category\/treatmentsideeffects\/\" rel=\"category tag\">Treatment & Side Effects<\/a>"},"taxonomies":{"post_tag":""},"readTime":{"min":3,"sec":31},"status":"publish","excerpt":""},{"id":39953,"link":"https:\/\/lymphoma-stg.clarovantdigital.com\/treatment-impact-on-fatigue-among-lymphoma-patients-global-survey-findings\/","name":"treatment-impact-on-fatigue-among-lymphoma-patients-global-survey-findings","thumbnail":{"url":"https:\/\/lymphoma-stg.clarovantdigital.com\/wp-content\/uploads\/Abstract1-1.png","alt":""},"title":"Treatment Impact on Fatigue Among Lymphoma Patients - 2022 Global Patient Survey","author":{"name":"","link":"https:\/\/lymphoma-stg.clarovantdigital.com\/author\/firstname lastname\/"},"date":"Apr 10, 2024","dateGMT":"2024-04-10 16:56:00","modifiedDate":"2025-10-14 14:51:00","modifiedDateGMT":"2025-10-14 14:51:00","commentCount":"0","commentStatus":"open","categories":{"coma":"<a href=\"https:\/\/lymphoma-stg.clarovantdigital.com\/category\/treatmentsideeffects\/fatigue\/\" rel=\"category tag\">Fatigue<\/a>, <a href=\"https:\/\/lymphoma-stg.clarovantdigital.com\/category\/lc-research\/\" rel=\"category tag\">LC Research<\/a>, <a href=\"https:\/\/lymphoma-stg.clarovantdigital.com\/category\/treatmentsideeffects\/\" rel=\"category tag\">Treatment & Side Effects<\/a>","space":"<a href=\"https:\/\/lymphoma-stg.clarovantdigital.com\/category\/treatmentsideeffects\/fatigue\/\" rel=\"category tag\">Fatigue<\/a> <a href=\"https:\/\/lymphoma-stg.clarovantdigital.com\/category\/lc-research\/\" rel=\"category tag\">LC Research<\/a> <a href=\"https:\/\/lymphoma-stg.clarovantdigital.com\/category\/treatmentsideeffects\/\" rel=\"category tag\">Treatment & Side Effects<\/a>"},"taxonomies":{"post_tag":""},"readTime":{"min":10,"sec":48},"status":"publish","excerpt":"Presented at the AACR Annual Meeting\nfrom 5-10 April 2024 in San Diego, California. Cancer related fatigue (CRF) continues to be a challenging phenomenon that is often\nunder-reported and poorly understood. With etiologies in both disease and treatment\nmanifesting as a symptom and a side-effect respectively, CRF is highly incident and\npresents a significant clinical problem that impacts survivorship. We conducted a survey\nto ascertain the patient reported incidence of symptoms and side-effects for people with\nlymphoma or chronic lymphocytic leukemia (CLL)."},{"id":39971,"link":"https:\/\/lymphoma-stg.clarovantdigital.com\/predicting-treatment-related-fatigue-in-the-context-of-lymphoma-and-chronic-lymphocytic-leukemia\/","name":"predicting-treatment-related-fatigue-in-the-context-of-lymphoma-and-chronic-lymphocytic-leukemia","thumbnail":{"url":"https:\/\/lymphoma-stg.clarovantdigital.com\/wp-content\/uploads\/Abstract1-2.png","alt":""},"title":"Predicting Treatment Related Fatigue in Lymphoma\/CLL","author":{"name":"","link":"https:\/\/lymphoma-stg.clarovantdigital.com\/author\/firstname lastname\/"},"date":"Apr 7, 2024","dateGMT":"2024-04-07 17:08:00","modifiedDate":"2025-10-14 14:51:18","modifiedDateGMT":"2025-10-14 14:51:18","commentCount":"0","commentStatus":"open","categories":{"coma":"<a href=\"https:\/\/lymphoma-stg.clarovantdigital.com\/category\/subtype-specific\/cll\/\" rel=\"category tag\">CLL<\/a>, <a href=\"https:\/\/lymphoma-stg.clarovantdigital.com\/category\/treatmentsideeffects\/fatigue\/\" rel=\"category tag\">Fatigue<\/a>, <a href=\"https:\/\/lymphoma-stg.clarovantdigital.com\/category\/lc-research\/\" rel=\"category tag\">LC Research<\/a>, <a href=\"https:\/\/lymphoma-stg.clarovantdigital.com\/category\/subtype-specific\/\" rel=\"category tag\">Subtype-Specific<\/a>, <a href=\"https:\/\/lymphoma-stg.clarovantdigital.com\/category\/treatmentsideeffects\/\" rel=\"category tag\">Treatment & Side Effects<\/a>","space":"<a href=\"https:\/\/lymphoma-stg.clarovantdigital.com\/category\/subtype-specific\/cll\/\" rel=\"category tag\">CLL<\/a> <a href=\"https:\/\/lymphoma-stg.clarovantdigital.com\/category\/treatmentsideeffects\/fatigue\/\" rel=\"category tag\">Fatigue<\/a> <a href=\"https:\/\/lymphoma-stg.clarovantdigital.com\/category\/lc-research\/\" rel=\"category tag\">LC Research<\/a> <a href=\"https:\/\/lymphoma-stg.clarovantdigital.com\/category\/subtype-specific\/\" rel=\"category tag\">Subtype-Specific<\/a> <a href=\"https:\/\/lymphoma-stg.clarovantdigital.com\/category\/treatmentsideeffects\/\" rel=\"category tag\">Treatment & Side Effects<\/a>"},"taxonomies":{"post_tag":""},"readTime":{"min":2,"sec":44},"status":"publish","excerpt":"Presented on 5 -7 April 2024 in Orlando, Flordia.\n\nPresented at the NCCN Annual ConferenceCancer-related fatigue (CRF) is highly prevalent, significantly impacts patient well-being, and is a hugely under-reported and poorly understood phenomenon.\n\nThis study aimed to build a predictive model to help identify patients at risk for CRF based on routinely collected clinical information in the context of lymphoma and chronic lymphocytic leukemia (CLL)."},{"id":40021,"link":"https:\/\/lymphoma-stg.clarovantdigital.com\/patient-reported-experience-with-fatigue-a-cross-sectional-study-examining-indolent-and-aggressive-lymphomas\/","name":"patient-reported-experience-with-fatigue-a-cross-sectional-study-examining-indolent-and-aggressive-lymphomas","thumbnail":{"url":"https:\/\/lymphoma-stg.clarovantdigital.com\/wp-content\/uploads\/Patient-Reported-Fatigue-in-Indolent-vs.-Aggressive-Lymphomas.png","alt":""},"title":"Patient Reported Fatigue in Indolent vs. Aggressive Lymphomas","author":{"name":"","link":"https:\/\/lymphoma-stg.clarovantdigital.com\/author\/firstname lastname\/"},"date":"Dec 13, 2022","dateGMT":"2022-12-13 17:45:00","modifiedDate":"2025-10-14 15:06:25","modifiedDateGMT":"2025-10-14 15:06:25","commentCount":"0","commentStatus":"open","categories":{"coma":"<a href=\"https:\/\/lymphoma-stg.clarovantdigital.com\/category\/treatmentsideeffects\/fatigue\/\" rel=\"category tag\">Fatigue<\/a>, <a href=\"https:\/\/lymphoma-stg.clarovantdigital.com\/category\/lc-research\/\" rel=\"category tag\">LC Research<\/a>, <a href=\"https:\/\/lymphoma-stg.clarovantdigital.com\/category\/treatmentsideeffects\/\" rel=\"category tag\">Treatment & Side Effects<\/a>","space":"<a href=\"https:\/\/lymphoma-stg.clarovantdigital.com\/category\/treatmentsideeffects\/fatigue\/\" rel=\"category tag\">Fatigue<\/a> <a href=\"https:\/\/lymphoma-stg.clarovantdigital.com\/category\/lc-research\/\" rel=\"category tag\">LC Research<\/a> <a href=\"https:\/\/lymphoma-stg.clarovantdigital.com\/category\/treatmentsideeffects\/\" rel=\"category tag\">Treatment & Side Effects<\/a>"},"taxonomies":{"post_tag":""},"readTime":{"min":3,"sec":37},"status":"publish","excerpt":"Presented at the American Society of Hematology (ASH) symposium in New Orleans December 10-13 2022. Cancer-related fatigue (CRF) is a persistent, subjective sense of physical, emotional, or cognitive tiredness related to cancer or cancer treatment, which negatively impacts functioning and quality of life (NCCN, 2015). The severity of CRF varies by lymphoma subtype, stage, and treatment received.\n\nLittle information is known about patients\u2019 experience with fatigue based on the rate of disease progression (indolent or aggressive lymphomas). This study aims to provide insights into the fatigue experience of patients with indolent lymphomas compared to those with aggressive lymphomas, using the Lymphoma Coalition (LC) 2022 Global Patient Survey (GPS) on Lymphomas and CLL."}]