Lymphoma Coalition publishes research on the experiences of patients and care partners based on learnings from the Global Patient Survey on Lymphomas and CLL (GPS) and other projects.
It is imperative the issues raised by patients and their care partners through the biennial survey, interviews, focus groups and other initiatives are conveyed to the medical and research communities to improve care moving forward.
[{"id":43364,"link":"https:\/\/lymphoma-stg.clarovantdigital.com\/variances-in-patient-experiences-with-shared-decision-making-by-treatment-in-patients-with-lbcl-analysis-of-lymphoma-coalitions-2024-global-patient-survey-on-lymphomas-and-cll\/","name":"variances-in-patient-experiences-with-shared-decision-making-by-treatment-in-patients-with-lbcl-analysis-of-lymphoma-coalitions-2024-global-patient-survey-on-lymphomas-and-cll","thumbnail":{"url":"https:\/\/lymphoma-stg.clarovantdigital.com\/wp-content\/uploads\/EBMT-2026-Annual-Meeting-Poster-FV.png","alt":""},"title":"Variances In Patient Experiences With Shared Decision-Making By Treatment In Patients With LBCL: Analysis Of Lymphoma Coalition's 2024 Global Patient Survey On Lymphomas And CLL","author":{"name":"lc_author","link":"https:\/\/lymphoma-stg.clarovantdigital.com\/author\/lc_author\/"},"date":"Mar 27, 2026","dateGMT":"2026-03-27 15:55:01","modifiedDate":"2026-05-13 17:32:42","modifiedDateGMT":"2026-05-13 17:32:42","commentCount":"0","commentStatus":"closed","categories":{"coma":"<a href=\"https:\/\/lymphoma-stg.clarovantdigital.com\/category\/lc-research\/\" rel=\"category tag\">LC Research<\/a>, <a href=\"https:\/\/lymphoma-stg.clarovantdigital.com\/category\/commdecision-making\/shareddecision-making\/\" rel=\"category tag\">Shared Decision-Making<\/a>, <a href=\"https:\/\/lymphoma-stg.clarovantdigital.com\/category\/subtype-specific\/\" rel=\"category tag\">Subtype-Specific<\/a>","space":"<a href=\"https:\/\/lymphoma-stg.clarovantdigital.com\/category\/lc-research\/\" rel=\"category tag\">LC Research<\/a> <a href=\"https:\/\/lymphoma-stg.clarovantdigital.com\/category\/commdecision-making\/shareddecision-making\/\" rel=\"category tag\">Shared Decision-Making<\/a> <a href=\"https:\/\/lymphoma-stg.clarovantdigital.com\/category\/subtype-specific\/\" rel=\"category tag\">Subtype-Specific<\/a>"},"taxonomies":{"post_tag":""},"readTime":{"min":3,"sec":27},"status":"publish","excerpt":"Presented during the 52nd Annual Meeting of the EBMT, March 22\u201325, 2026 in Madrid, Spain.\n\nLarge B-cell lymphoma (LBCL) is an aggressive form of lymphoma where timely, effective treatment decisions are critical. For individuals with relapsed\/refractory or high-risk disease, therapies such as stem cell transplant (SCT) and CAR-T are often recommended. In this context, shared decision-making (SDM) plays a vital role in ensuring that treatment choices reflect patient preferences, values, and understanding. However, differences in patient experiences and levels of involvement in decision-making may vary depending on the treatment received, highlighting the need to better understand how SDM is implemented in clinical practice.\n\nAim\nThis study explored variations in patient experiences with shared decision-making among people with lived experience of LBCL, comparing those who received CAR-T therapy and stem cell transplant.\n\nObjective: Identify differences in patient involvement, communication with healthcare providers, and treatment preferences across therapy types, to inform strategies that strengthen patient-centred care and improve shared decision-making practices."},{"id":41545,"link":"https:\/\/lymphoma-stg.clarovantdigital.com\/variances-in-patient-reported-experiences-with-shared-decision-making-by-biological-sex-in-patients-with-diffuse-large-b-cell-lymphoma-dlbcl-an-analysis-from-the-lymphoma-coalition-2024-gl\/","name":"variances-in-patient-reported-experiences-with-shared-decision-making-by-biological-sex-in-patients-with-diffuse-large-b-cell-lymphoma-dlbcl-an-analysis-from-the-lymphoma-coalition-2024-gl","thumbnail":{"url":"https:\/\/lymphoma-stg.clarovantdigital.com\/wp-content\/uploads\/Variances-In-Patient-Reported-Experiences-with-Shared-Decision-Making.png","alt":""},"title":"Variances In Patient-Reported Experiences with Shared Decision-Making By Biological Sex in Patients with Diffuse Large B-Cell Lymphoma (DLBCL) \u2013 An Analysis from the Lymphoma Coalition 2024 Global Patient Survey on Lymphomas And CLL","author":{"name":"","link":"https:\/\/lymphoma-stg.clarovantdigital.com\/author\/firstname lastname\/"},"date":"Dec 9, 2025","dateGMT":"2025-12-09 18:01:30","modifiedDate":"2025-12-16 17:52:31","modifiedDateGMT":"2025-12-16 17:52:31","commentCount":"0","commentStatus":"closed","categories":{"coma":"<a href=\"https:\/\/lymphoma-stg.clarovantdigital.com\/category\/commdecision-making\/\" rel=\"category tag\">Communication & Decision-Making<\/a>, <a href=\"https:\/\/lymphoma-stg.clarovantdigital.com\/category\/lc-research\/\" rel=\"category tag\">LC Research<\/a>, <a href=\"https:\/\/lymphoma-stg.clarovantdigital.com\/category\/commdecision-making\/shareddecision-making\/\" rel=\"category tag\">Shared Decision-Making<\/a>","space":"<a href=\"https:\/\/lymphoma-stg.clarovantdigital.com\/category\/commdecision-making\/\" rel=\"category tag\">Communication & Decision-Making<\/a> <a href=\"https:\/\/lymphoma-stg.clarovantdigital.com\/category\/lc-research\/\" rel=\"category tag\">LC Research<\/a> <a href=\"https:\/\/lymphoma-stg.clarovantdigital.com\/category\/commdecision-making\/shareddecision-making\/\" rel=\"category tag\">Shared Decision-Making<\/a>"},"taxonomies":{"post_tag":""},"readTime":{"min":3,"sec":29},"status":"publish","excerpt":"Presented during the ASH Annual Meeting on December 6 in Orlando, Florida.\nShared decision-making (SDM) is essential to patient-centred care, yet experiences vary significantly among people with diffuse large B-cell lymphoma (DLBCL). This analysis from the 2024 Global Patient Survey found important differences by biological sex: male respondents more often reported feeling highly involved, encouraged to ask questions, and offered multiple treatment options, while female respondents were more likely to prefer making final decisions themselves. Despite these differences, only half of all respondents\u2014regardless of sex\u2014felt adequately involved in treatment decisions, highlighting clear gaps in SDM that require attention in clinical practice."},{"id":40059,"link":"https:\/\/lymphoma-stg.clarovantdigital.com\/patient-experience-and-doctor-communication-in-lymphoma-and-cll-clinical-trials-vs-non-clinical-trials\/","name":"patient-experience-and-doctor-communication-in-lymphoma-and-cll-clinical-trials-vs-non-clinical-trials","thumbnail":{"url":"https:\/\/lymphoma-stg.clarovantdigital.com\/wp-content\/uploads\/A-comparative-analysis-of-patient-experience-and-patient-doctor-communication-in-patients-with-lymphoma-and-CLL-Clinical-trials-versus-non-Clinical-trials.png","alt":""},"title":"Patient Experience and Doctor Communication in Lymphoma and CLL: Clinical Trials vs. non-Clinical Trials","author":{"name":"","link":"https:\/\/lymphoma-stg.clarovantdigital.com\/author\/firstname lastname\/"},"date":"Dec 12, 2021","dateGMT":"2021-12-12 18:32:00","modifiedDate":"2025-10-14 15:07:54","modifiedDateGMT":"2025-10-14 15:07:54","commentCount":"0","commentStatus":"open","categories":{"coma":"<a href=\"https:\/\/lymphoma-stg.clarovantdigital.com\/category\/treatmentsideeffects\/clinicaltrials\/\" rel=\"category tag\">Clinical Trials<\/a>, <a href=\"https:\/\/lymphoma-stg.clarovantdigital.com\/category\/commdecision-making\/\" rel=\"category tag\">Communication & Decision-Making<\/a>, <a href=\"https:\/\/lymphoma-stg.clarovantdigital.com\/category\/commdecision-making\/doctor-patientcommunication\/\" rel=\"category tag\">Doctor\u2013Patient Communication<\/a>, <a href=\"https:\/\/lymphoma-stg.clarovantdigital.com\/category\/lc-research\/\" rel=\"category tag\">LC Research<\/a>, <a href=\"https:\/\/lymphoma-stg.clarovantdigital.com\/category\/commdecision-making\/shareddecision-making\/\" rel=\"category tag\">Shared Decision-Making<\/a>, <a href=\"https:\/\/lymphoma-stg.clarovantdigital.com\/category\/treatmentsideeffects\/\" rel=\"category tag\">Treatment & Side Effects<\/a>","space":"<a href=\"https:\/\/lymphoma-stg.clarovantdigital.com\/category\/treatmentsideeffects\/clinicaltrials\/\" rel=\"category tag\">Clinical Trials<\/a> <a href=\"https:\/\/lymphoma-stg.clarovantdigital.com\/category\/commdecision-making\/\" rel=\"category tag\">Communication & Decision-Making<\/a> <a href=\"https:\/\/lymphoma-stg.clarovantdigital.com\/category\/commdecision-making\/doctor-patientcommunication\/\" rel=\"category tag\">Doctor\u2013Patient Communication<\/a> <a href=\"https:\/\/lymphoma-stg.clarovantdigital.com\/category\/lc-research\/\" rel=\"category tag\">LC Research<\/a> <a href=\"https:\/\/lymphoma-stg.clarovantdigital.com\/category\/commdecision-making\/shareddecision-making\/\" rel=\"category tag\">Shared Decision-Making<\/a> <a href=\"https:\/\/lymphoma-stg.clarovantdigital.com\/category\/treatmentsideeffects\/\" rel=\"category tag\">Treatment & Side Effects<\/a>"},"taxonomies":{"post_tag":""},"readTime":{"min":5,"sec":4},"status":"publish","excerpt":"Presented at the 63d American Society of Hematology (ASH) conference on 12 December. Clinical trials are essential in ensuring that new treatments are safe and effective and are also a way to improve standards of care. Patients enrolled in clinical trials receive optimal clinical care due to the close management included in trial design.\n\nUsing the 2020 Lymphoma Coalition (LC) Global Patient Survey (GPS) on lymphomas and CLL, this study aims to provide insight into the experience of patients with lymphoma and CLL who have participated in a clinical trial compared to those who have not."}]