Read the full article on The Lancet Haematology (free access until 22 April 2025):
🔗 https://bit.ly/3Xq6mfO
The article is also available as a PDF, simply click the button below to download a copy:
Download here
Published article: “Ask, do not tell: consulting a patient advisory board to understand unmet needs of patients with GVHD in Europe,” in The Lancet Haematology.
Front Title Here
Front Content Here
Back Title Here
Back Content Here
This study explores the unmet needs of people living with graft-versus-host disease (GVHD) across Europe, focusing on improving patient care, support, and research. The research is based on insights gathered through a Community Advisory Board (CAB) organised by Lymphoma Coalition, which brought together patients, patient advocates, and members of the European Network on Chronic Graft-Versus-Host Disease (cGVHD) EUROGRAFT. This multidisciplinary approach ensured that the study reflected a wide range of perspectives and provided actionable recommendations for enhancing GVHD management.
The article is co-authored by Lorna Warwick, CEO of Lymphoma Coalition, and Natacha Bolaños, Head of Membership & Alliances at Lymphoma Coalition, alongside other experts in the field. The Lancet Haematology encourages authors to share their research widely, and Lymphoma Coalition is pleased to make this publication available on its website to ensure broader access for the patient community, advocates, and healthcare professionals.
Lymphoma Coalition extends its gratitude to The Lancet Haematology for publishing this important study and to all contributors who helped shape this work. By amplifying patient voices and fostering collaboration, this research represents a significant step towards improving the care and support available for those affected by GVHD.